20+ Years of Experience
100's Of Academic, Private, NonProfit Registries
Example Videos On Implementation
National Emergency
Airway Registry (NEAR)
Epilepsy Case Example
Hallmarks Of Successful Registries
Active, Excited, Committed Patients!
• Personalize Disease Information and Education:
Provide your tailored health info and resources specific to each patient's condition, boosting understanding and supporting their wellness journey.
• Patient Reported Outcomes:
Encourage patients to share their health experiences and symptoms directly, allowing healthcare providers to personalize and adapt care to meet their individual needs effectively.
• Secure Messaging and File Transfer:
Provide a secure platform for communication, ensuring patients can connect with providers easily, share important documents, and receive prompt responses.
• Incentive Rewards:
Motivate patients by providing rewards for engaging with their care plans and achieving health goals, making health management both motivating and rewarding.
Real-Time Use In Clinical Practice
• Flexible Data Capture:
Configure data collection, EMR and device integration to match specific clinical requirements, ensuring efficient capture of relevant information.
• Manage Clinical Workflow:
Streamline data-related tasks and processes, significantly reduce or eliminate the burden of administrative documentation and reporting, allowing for more patient care time.
• Automate Clinic Notes:
Save time and minimize errors by automatically generating clinic notes, visual case summaries, and reports based on real-time data integration.
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• Immediate Analytical Decision Support:
Make timely decisions with instant access to real-time analytical insights, thereby enhancing the quality, accuracy, and personalization of care provided.
Easy To Get Hands Around Data
• Extract Data Anytime:
Quickly access the data you need with a simple point-and-click interface. Select from multiple export formats, including Excel, CSV, SPSS, and SAS.
• Instant Data Transformation:
Simplify data manipulation and preparation for formal analysis by creating re-coded or calculated variables on-the-fly — no external statistical software required. Handle even complex calculations for faster insights.
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• Optimize Data Quality:
Streamline data analysis with integrated tools designed to evaluate and enhance data quality. Utilize descriptive statistics, outlier detection, and generate actionable queries to track and resolve issues efficiently.
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• Eliminate Admin Reporting, Connect Publications:
Create documents that dynamically link registry data to charts and tables. Instantly update results with a single click, removing the need for tedious manual revisions.
Connects & Manages Other Studies
• Share Data Across Studies:
Streamline workflows and maintain the most current data by linking patients across studies, enabling seamless data sharing and integration.
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• Integrate Other Research Projects:
Efficiently add and manage research projects (e.g., clinical trials), grant access and permissions as needed. Provide patients with a central portal and single account for seamless access to all their projects.
• Centralize Project Management:
Organize and manage study timelines in a unified environment. Use a centralized calendar to coordinate activities, optimize scheduling, and ensure seamless planning across projects.
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• Leverage Previous Work:
Save time and reduce effort by reusing study design elements (forms, schedules) and key outputs (IRB reports, charts, tables, datasets) across new studies.
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1 Site
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Poor Data Quality
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Years Of Effort
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15 Sites
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Real-Time Clinical Utility
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First Publication
Studytrax Conversion
( 4 Months )
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Common Frustrations
Unusable Data
The data is unusable, incomplete, invalid, inaccessible, etc.
Delayed Changes
Changes are technically involved, delayed, and risk data loss.
Nothing For Publishing
Little or no tools to facilitate the analysis and publication of results.
High Dropout Rate
Patient's often don't complete data, loose interest, and/or dropout.
No Research Features
Registry has no tools to manage other, connected research projects.
Unhappy Users
There is a steep learning curve and the UI is difficult to navigate.
No Clinical Utility
Real-time clinic use impossible, and/or has no practical use.
No Patient Benefits
Only thing patients can do is fill out forms, often leading to dropouts.
Inflexible Features
Feature don't match workflow and have limited setup options.
Can't Get Data
Extracting data is often technical, cumbersome, and limited to raw data.
Siloed Data
The data isn't accessible across studies requiring duplicate data entry
Costly
Nearly everything about working with the registry involves significant cost.